Monday, March 22, 2010

Barium Swallow Procedure....

Im just starting to feel normal following this procedure...LOLOLOL

Wasn't that big of a deal on Friday.....had to go without food and water for awhile...which wasnt bad...then they gave me two large cups-totally full of the barium white goo liquid to swallow. Tasted like chalk but had the consistancy of thick slime ooooz(sp)LOLOLOL

I abt gagged while I was swallowing-which they kept telling me to do as they took pictures, but I made it through and kept it all down. Just when I thought I wasdone they gave me small little cup of crystals to swallow-and I thought ok-how the heck is that going down...then handed me another cup. I was thinking "Oh good-water to wash it down" but NOooooooooo...more goo to wash it down...yeah!!LOLOLOL That felt like pop rocks, but totally didnt taste like pop rocks...I guess it supposedly fills up your stomach with air-which became quiet obvious as I was instructed not to burp...LOLOL-fun-eh?LOLOLOL

But it was pretty cool watching the Barium slid down my throat and fill up my stomach on the screen-really cool actually...

Then I thought I wa sdone again-but nooo...I was then told to turn ard against the table and hold on? I was like what??LOLOL, It procedded to turn all the way down which it had been standing up...which felt really weird, then was told to swallow agn-as they took some more pictures....and handed me more goo to swallow with a straw....

So by the time I was done I was plum full...but full of that white goo...yeah-eh?
Thats where he saw the reflux going on....He told me that the muscle right there is inflamed and that is what is feeling like a lump. Which makes sense-as thats what is causing that lump feeling in my throat. Which I had been worrying it was my nodule just growing and growing...which, still in my head, is....LOLOL, but thats another paranoid thought and post I guess....dont want to open that wound up again...
oops-opened....darn....Hmmm...okay festering again....okay.......LOLOLOL back to my swallow study...
So I have an apt with my ENT tom and we shall see what exactly he wants to do and what the pictures exactly saw....I have been on a generic prilosec(which is still 20 bucks for a 2 week supply)I will be asking him to make it some kind of priscription so it will only cost 10 bucks a month-better anyway...

When I got home on Friday I had one of those painful closing throat episodes agn-hurt so bad.....I havent had one since I first made the apt -early part of Feb, so I dont know if those pills are working or what???

So we shall see tom I guess...

Sunday night I started having real digestion issues-and massive headaches as the Barium was working through my system I guess...That was a load of fun...but today Im feeling much better and I think Im beginning to get back to normal...Man-who would have thought some crazy liquid going through your body would feel so..... weird-Ill leave it at that-LOLOLOL, but I think giving birth is tops still....LOLOLOLOL








Obamas Health Care (Takeover)



I seriously have been so sick today with this.......I CAN NOT believe they would let this pass when soooo many Americans have told them they are AGAINST this. I can not believe that we fought so hard and risked our lives fighting for our freedoms only to once yet again be controlled by our own government........I weep for our country today...sigh....How did we let this happen? These mandates are sooo unconstitutional-right? so what exactly is going on??

Nancy is just incredible-holding that great big gavel-who the heck does she think she is anyway...ugh....saying that our Founders would be pleased with this bill ..HA!! They were the ones who WARNED us against this type of control!!!!

-Health care WILL go up
-Patients will not be able to be seen so EMERGENCY costs WILL go up(examples in Mass.)
-THEY will get to decide our Drs.,or our costs will go up
-THEY will get to decide our treatments
-THEY will get to decide how we treat our kids medically
..the list goes on and on......and on......what a sad day for our country....we WILL be our own undoing!:(

-just to name a few of the so called effects this will have on our country...and folks this is JUST the beginning....sigh....America has changed folks.....
"These are the times that try mens souls"







Update on Dh...

Sorry that I havent been keeping up with this thing.
Dh had his neuro apt last week and as most of you know-he didnt get that OK to drive, which has him quiet bummed.
The Dr thinks he had a seizure as he totally seized up-his whole body , and couldnt remember anything for a good 30 min when he woke up. So he has a bunch of tests planned as soon as they line him up.
I think this whole thing has really shaken him up a lot. He is constantly thinking about it-wondering if and where he will have another one....
I just count my lucky stars that he is OK and that his buddy was there to help him through this...Someone up above was def watching over him and protecting him:)
So he isnt allowed to climb anything, drive, take a bath etc-so he'll be on light duty at work for awhile-which is going to be really hard for him. Hes going to go crazy I know it without things to do, but hopefully they can keep him busy...
Everyone-please keep him in your prayers that he will be comforted and not worry abt things-that everything will be ok:)








Saturday, March 20, 2010

How Does Utah Measure Up???

Source: Disability Scoop:
A scathing report released one year ago brought unprecedented attention to the use of restraint and seclusion tactics in schools, documenting rampant examples of abusive and even deadly practices primarily involving special education students.

Now Congress is set to consider legislation this year to institute the first-ever federal oversight regulating these tactics. Meanwhile, a handful of states have made changes in an effort to promote student safety. (Read all of Disability Scoop’s coverage of restraint and seclusion >>)

Yet, for students who enter classrooms everyday, the battle is far more personal. Relatively few protections are in place in most states and consideration of the pending federal legislation will take time. That means parents and students themselves must be on the watch, says Curt Decker, executive director of the National Disability Rights Network, which issued the initial report last January and is currently preparing a follow up report.

Don’t condone it

Most importantly, Decker says, don’t give schools a free pass.

The IEP should not contain any sanction of seclusion and restraint,” he says. “It’s not proper programming when you have to accept a restraint or a seclusion methodology in order to keep your kid in an integrated classroom.

Rather, it is the purpose of the IEP meeting to establish appropriate programming and positive behavior supports designed to avoid severe behavior problems, Decker says.

If a child’s IEP currently includes provisions for restraint or seclusion, now is the time to request that such tactics be stripped from the plan. Should the federal legislation pass as it’s currently proposed, such measures will not be allowed in IEP plans anyway.

Watch for the signs

In most cases, parents have no idea that their child is experiencing restraint or seclusion at school. So, even if your child’s IEP doesn’t mention the techniques, that doesn’t mean school staff aren’t employing them.

Keep a keen eye for signs of disciplinary measures gone wrong, especially if you’re dealing with a child who can’t tell you what’s going on at school. Pay attention if a child is nervous about school, refuses to go or is acting out in any way.

“A lot of parents realize that their child was restrained or secluded 85 times before they even found out about it,” Decker says. “If the parents walk into the classroom and the kid is tied to a chair, then yeah, that’s pretty obvious, but too many parents just don’t even know this is happening.”

Look for assistance

If you do suspect trouble, know your rights. The protection and advocacy system, or P&A, in almost every state offers a brochure or manual on restraint and seclusion rules, Decker says. Fellow parents, local parent training centers and other advocacy organizations are also good places to turn for assistance. (Find your state’s P&A >>)

Currently, 17 states have no laws or policies regarding restraint and seclusion in schools. And even in states where regulations exist, the level of restriction varies. (Find out where your state stands >>)

Use the IEP process

Present any concerns to your child’s teacher and other school staff. Then, request records pertaining to your child and demand that school staff document any use of restraint or seclusion, Decker says.

When you are noticing problems, it’s important to trigger the IEP process to examine what’s wrong with the child’s program as a whole that’s leading to behavior issues.

The whole IEP process is built on the premise that if the child is not doing well – either not meeting the goals or acting out – then it’s a failure of the program,” Decker says. “Don’t accept some kind of physical restraint as the answer to the problem.”
Right Now In Utah:

Utah

Statewide restrictions on restraint (R) or (S) : Statute (R&S)

Use of Reasonable and Necessary Physical Restraint or Force, UTAH ADMIN. CODE § 53a-11-805 (http://le.utah.gov/~code/TITLE53A/htm/53A0C038.htm

R or S restricted to ensure immediate physical safety of student or others ......................... NO

Prone restraint banned .......................................................................................................... NO

Automatic notice to parents after R or S ............................................................................... Parent, DOE (R&S)

Training of School Staff ......................................................................................................... Staff R/S

Contact P&A: www.disabilitylawcenter.org






Tuesday, March 16, 2010

Angels Watching Over Us

We had a VERY terrifying scare last night.

I was waiting for dh to come home as usual when I get a call abt 1 AM that dh had been in a car accident. He phoned and said that he was being transferred to the hospital.

I immediately went into high alert and quickly got the kids up from their slumbers, got them coats and shoes and headed out the door.

We arrived at the hospital just as they were wheeling him in from the ambulance. We went into the emergency and there was my sweety-looking very banged up. But OKAY!!! WHEW!!!!!He had a bloody nose and a huge goose egg above his left eye. THis is where we got all the details abt the accident.

Dh had been driving with one passenger in the UTA van. THey had been laughing an joking when Dh suddenly lost conscieous. His body seized up and his work buddy had to use all the power and strength that he had to manuver the wheel, as dh had it clamped in his hands. They were on cruise control at 75-77 miles per hr!!!! They rammed into the side rail and barelly kept from turning over. But the work buddy managed to keep them on the road and safe.

No other vehicles where involved as it was so early in the morning. The next thing dh knows he is waking up to the work buddy yelling for him to mash the brakes. Thats all he remembers. Talk abt terrifying!!!!

He bumped his head really good on the side window, but he is okay-Praise the Lord!!!! HIs buddy is very shaken up by everything and they both are taking off work today and tom and maybee the rest of the week.

Every test immagineable was done once at the hospital and everything checked out okay. No heart issues, no internal issues etc. But they still have no idea why he blacked out while he was driving-which is very scary. So he is not allowed to drive until he is ok'd by a neurologist-which is set for tom at 2.

WE finally where allowed to come home last night at abt 6 AM.
Please keep dh is your prayers as he is very worried. He is doing alright-just still shaken by everything. But we are okay.:) Someoen was def watching over him last night:)






Monday, March 15, 2010

GREAT NEWS!!!!!:)

Monkey Boy doesnt have CELIAC!! WHOOT!!!!
So I guess on Friday he will be getting his allergies tested along with my barium swallow in LOgan:) Nummy!!-Im sooo glad though abt the Celiac-now we just gotta figure out what his tummy deal is....??Hmmm....Allergies I imagine....








Sunday, March 14, 2010

ST Patricks Day Do's

THis is what Im doing for Flamingos hair on Wed-St Patricks Day-Cute-eh? :)












Thursday, March 11, 2010

Finally a Smile :)

Tomorrow Monkey Boy has an apt to get tested for Celiac Disease. He needs to get some blood drawn and I have been dreading telling him all week-but figured I had to tonight.

Boy-did the tears start to fall:( My poor little guy. He is just terrified I think since his IV abt going to the doctor and getting poked agn just is very frightening for him now:(

Every time he thought abt it tonight he would ask me questions and hed start to cry. "where will they put it Mom? " "but Mom thats where my other owie is!!!!!" " But that hurts over there too!!"

UGh-Im hating I mean hating every min of this!!!:(

I had thought that celiac disease was just an allergy initially-so I was considering not getting him tested, but with the research I have done over the past couple of days-its not a good thing to have and not treat AT ALL...

A child who is not diagnosed properly can go on to have osteoporosis, certain cancers, small stature, miscarriages, and other problems as an adult.
What Causes it?

Children who have celiac disease have an immune response to gluten that damages the lining of the small intestine. This flattens the lining of the intestine so it does not absorb and digest food the way it should.


So I think its a must.

I thought Monkey Boys upset stomachs were just that-upset stomachs. I notice them alot during holidays so I thought it was stress etc....but the Dr said that it could be because of different foods being eaten and more baked goods with flour etc....that I make alot during that time...

He will just for no reason some nights-Id say its at least once a month- just get sick for no reason. He will wake me up and Ive got sheets to wash etc...This has happend numerous times and the next morning he is right as rain???

When we went to Roadhouse the first time, he said he didnt care for the plain rolls....and later than night he was sick. Since then slowly he hasnt been wanting rolls, or any bread, like on hamburgers(McD's) etc... which is really weird...as those are his favorites....hotdog buns, etc.......so that is why the Dr said his body is telling him not to eat them....so he's not eating them.

So we shall see I guess if this is what it is.

He sure wasnt happy abt the news though tonight abt going to the Dr again:( I tried everything and said everything I could think of to get him to be okay with it. Guess what put a smile finally on his face? I told him he could choose any kind of treat he wanted-a happy meal?no....an icecream? no.....candy? no....a soda pop? no.....I finally told him-okay...anything......? and he said a pack of watermellon chewing gum!!!LOLOLOL-how funny is that?? I told him okay-how abt 2 packs of chewing gum and a pop? And he was all smiles:) Whew!LOLOLOLOL
Funny-eh?












Wednesday, March 10, 2010

Stinger Stuck On the Couch...

Well Im feeling a TUNs better this morning :) Whoot!! Good thing too-as the house totally needed a cleaning:)So Ive got that done and need to still help Monkey Boy finish a poster project for school tom-Hes got to make one of his favorite things-Hes doing wonderful-still complaining about a tummy ache though-but hes keeping things down and is hungry :) My tummy is a bit quessy still-so doubt Ill be eating much-but Im feeling better:)

Stinger is on the couch. Didnt sleep well last night and hes just in very slow- mo today:(He doesnt feel like moving, eating or drinking-but Ive been making sure hes getting something inside every few min:) Dont want another episode like Monkey Boy:(
But hes feeling really lousy......Nothing has come up*knocking ..again* LOLOL
He's happy he gets to miss group today :)Poor guy though-he just looks misereable:(







Tuesday, March 09, 2010

Flu Bug Hits...ugh...:(

Well I dont feel like writing much-but I thought I would write an update on what all happend today-...Had it all worked up in my mind and teh ENT decided not even to scope.
LOLOL_Hows thats for cool-eh:)
So he looked down my throat with a mirror deal-said I have LRE-basically acid reflux-yeah-and it can be silent-as in not have heart burn, but feel a lump in throat-be painful in throat etc..so Im taking some meds for 2 months. Getting a Barium Swallow done at the Hospital in Logan on the 19th-fun:) Then we shall see-he said I am of interest though-yeah,...?what the heck-LOLOL- as I am having some interesting symptoms.
He said I dont have "goiter" its presenting itself as one, as my nodule is enlarging my thyroid...so thats a relief-I was picturing a huge mass growing on the side of my neck:)But he said my nodule was almost 2 inches-what?? So we need to keep monitoring it he said...so thats not re assuring.....but he seams to think its okay to leave alone..so what do ya do??....????

Monkey Boy is feeling much better an dis eating things now-not reg food, just liquid stuff, but hes keeping it down. Last night he was puking agn at 9, so we shall see tonight *knock...knock"but he looks and is acting much better

Stinger has been down and out today and has felt like puking all day-you can totally tell when hes not feeling well as his energy just depletes really fast...so we shall see tonight with him...

Ive got puking going on too-yeah...I havent eaten anything since breakfast-but Im trying to keep liquids down...NOTHING sounds good-NOTHING....Im not feeling hot at all...:( Guess we have the stomach flu, bug-whatever-my all time favorite:( UGH!!I just get really crabby and I hate that....I just feel like sleeping-which Im probably going to do on the couch in a sec:)

But thats abt all thats going on---or up;)LOLOLOL ard here...LOLOLOL

Oh-Papa and Nana-I got your message thsi morning-it made me feel so good-THks{{HUGS}}
also your cards you sent-Monkey Boy really liked his-he read it all by himself:)Hes really getting good at reading:)But he read it 3 times:)THks for keeping us in your prayers-I love you both xoxoxoxoxoxo










Monday, March 08, 2010

"The Worst Day Ever"

Poor Monkey Boy.......
I JUST got back from the hospital. Everything is fine-just to let you all breathe....:)
But Monkey Boy and I were at the hospital up until now from abt 12 this afternoon.

As you all might have been aware...everyone is a bit sick here. Started with me and Ive given it to all the kiddoes. Flamingo is through the worst -only having a cough and Stinger has the stuffies...but Monkey Boy had been running a 102-103 temp for two days. Yesterday morning I woke up to Monkey Boy crying in the bathrooom puke all over and everything else you could think of but blood was on the bathroom floor:( So I had quiet a job of dissenfecting to do and cleanup and sheets and clothes to wash...His fever had broke, so I thought he had just had an upset stomach from Sonic the night before....plus a belly upset from the sickies going ard....So he has been out of school all but Thursday of last week....then this weekends upset stomach....
But Monkey Boy seamed fine and we all loaded up to go see Alice in Wonderland-me keeping and every watchful eye on my little guy. But he did well and he seamed to be enjoying himself with a smile etc....so I thought we had passed everything...WRONG...

I called the Dr and we got a referral to see an allergist today. I think its glutten related with him-as he is refusing to eat bread now....anyway....they all had off today and the boys were helping dh outside with car stuff.

I hear a loud running and Stinger calling me to hurry up and get outside. I run outside to Dh and Stinger in histeria saying that Monkey Boy had passed out..Dh procedded to tell me how he had shaken Monkey Boy to wake him up-how he wasnt responding and his eyes were open.

IF ANY parent has EVER gone through this-I have with Flamingo too, its the WORST thing in the WORLD to go through. !!!!!!Absolutely teh worst-the panci and fear you go through in those seconds is something you dont even like thinking about or remember-so I understood exactly what Dh was feeling and going through...

But Dh managed to wake Monkey Boy up-Monkey Boy was crying and was really shaken up. So I load him and myself into the car and immediately head to the Dr. Of course everyone was out to lunch-so I opted to go to the Er. as they are right next door. Monkey Boy is still crying and shaken up-Im a wreck-hadnt even done my hair yet...LOLOL, but in we go.

They took all his vitals and were going to administer a liquid test, but after consulting with someone they decided to just administer fluids to him as it had already progressed too far????What???

Dehydration?? I just didnt understand that-he looked fine...was drinking I thought, was eating I thought,had breakfast this morning....but he was dehydrated and thats what had caused him to pass out?Guess his runs and vomiting the day before had completely wiped him out...and I had NO idea-we even went to the movie for goodness sake???sheesh....

So my little angel had to have an IV inserted and boy-was that dramatic for him:( He was crying , I was a mess, and then he was crying again. Crying whenever he looked at the IV-we ended up covering it, and then he was a little better. Poor guy-eh? Complaining of stomach aches and crying and saying he wanted to go home.. Oh it was misereable!!!:( I felt sooo bad for him. Getting an IV is traumatic enough for me and Im the grownup-I could only imagine what was going on in that little head of his.....:( So we had to wait there for the fluids for abt 2 hrs....Monkey Boy woudl cry ever so often-Im sure he was just very scared and unsure of what what was going on...but he did really well-Im soooo proud of him:)he kept saying" Why did this have to happen to me-this is the worst day ever!!" Poor guy!:(

At the end they checked his urine-good, his blood work came back -good. So they watched him for a bit and gave him some teddy grahams and a Sprite :) That made it a little better I think :)

Dh also came up to visit with the kiddoes. Monkey Boy was sure glad to see his Dad :)

Now we are home and he is doing well...I think...sheesh-how do you know?? But he's sipping and eating a little bit...

He's on a bland diet-so no school for tom I guess. Dh went to the store and got him some trailer truck toys for being such a trooper:) and I got him a shake from Wendys:)So I think hes doing better-if the smile on his face tells you anything...but sheesh...what a day!!!!!Poor Guy!!!!

The Dr said something abt Celiac disease-so I need to get that checked at the allergist next week-his apt is for the 19th. The Dr says Monkey Boys body is in a way telling us what is wrong-as he is refusing to eat rolls and breads etc....gosh I hoep ist not glutten stuff related-that is well...in everything...... I guess glutten products upset your gastrial track if you have that-so I need to research it a bit.....but thats what it sounds like to the Dr with Monkey boys puking sporadically....but that wasnt what it was this past week and today-as of the fever with it this week....

Ive got my ENT apt tom afternoon-thrilled with that scope going down...yeah...

I tell ya what-Im abt full of Dr apts, Hospitals, I think to last all the yearand its only March..........yigh....and its still not through.....yeah....sigh...

But anyway-we are all okay, all doing well:)

This wekkend Dh was talking about cars and I just lost it-LOLOLOL, just started crying.....but if thats any indication of too much stress I dont know what else is....LOLOLOL

But we are all okay, we are all doing okay......breath Mrs T. -Breathe...LOLOL...yigh...LOLOLOL









Friday, March 05, 2010

HR 4247 Passes House!!!WHOOT!!!!

Success! As you all probably know, HR 4247 passed the House Yesterday (262 Yeas/ 153 Nays). I wanted to share with you some of the information we collected about the passage of the bill. You may already have this, but am sending it on, just in case, you don't. Jane Hudson, NDRN

Here is the Act as passed by the House: Keeping All Students Safe Act (Engrossed as Agreed to or Passed by House)[H.R.4247.EH][PDF] In addition to the Democrats who voted for the HR 4247, now named "Keeping All Students Safe Act," 24 Republicans voted for the act. Eight Democrats voted against it:

Driehaus - OH
Kirkpatrick (AZ)
Markey (CO)
Marshall - GA
Mitchell - AZ
Perlmutter - OR
Schrader - OR
Taylor - MS
To find out how the Congress people in your state voted, go , go to (Roll no. 82).

Finally, here are some news clips that came out today about the vote:

Washington Post: http://www.washingtonpost.com/wp-dyn/content/article/2010/03/03/AR2010030303286.html

New York Times: http://www.nytimes.com/2010/03/04/health/04restraint.html

AP: http://www.google.com/hostednews/ap/article/ALeqM5ieMm1HL-n7k_t8tm-2vEIC5-wK9AD9E7DF9G1






Thursday, March 04, 2010

United States Rep. Miller-WATCH THIS!!!

Rep. Miller's very passionate closing remarks today in regards to Federal Bill H.R 4247-The Keeping All Students Safe Act .
This man has fought hard to get our children protection in the school system. When no one else would listen to parents all over the United States Rep. Miller was listening and willing to speak up for children who could not speak up for themselves.

H.R. 4247, the Keeping All Students Safe Act: Chairman George Miller's Closing Statement
---------WOW!!!!!!!!!!!AWESOME!!!!!!!!













Federal Bill Update-Seclusion

FEDERAL BILL UPDATE


According to House leadership, this is what the day looks like. It will
all be broadcast on C-SPAN.
At approximately 12:30 p.m., the House is expected to reconvene and debate
the Rule for H.R. 4247 - Keeping All Students Safe Act.
Next votes: 1-2 hours on the Rule for H.R. 4247.
Note that the rule is just a procedural debate and vote and last about 1
hour. The House will debate and then vote on the rule for debate (limit time
and amendments). You will certainly hear people debating about the
underlying bill during this time as well.
Once the rule is adopted, we’ll then move to debate and votes on the
actual bill. I suspect it will be one hour to debate the bill (30 min/side), but
I haven’t seen the rule yet, so not sure.
When that time is expired, there will be a series of votes and finally we’
ll get to final passage vote. This could be as early as 3:30, but depends
on floor schedule.
Below is a note my communications director just sent out to reporters that
you are welcome to share with your lists/blog readers.
Committee on Education and Labor
_Click here to sign up for the “EdLabor Insider” e-newsletter_
(http://edlabor.house.gov/newsletter/)
*************************************************
We expect the House will begin debate on H.R. 4247, the Keeping All
Students Safe Act, at 12:30 today. As of now we expect the House to vote on the
bill around 3:30 or 4 – but that could change based on the floor schedule.
Again, the legislation will – for the first time – protect children from
abusive uses of restraint and seclusion in U.S. schools. This legislation
is a direct response to recent U.S. Government Accountability Office
investigation that found that at least hundreds of kids were being abused in
school by misuses of restraint or seclusion. The victims were children as young
as three and four, with disabilities and without disabilities, in public
and private schools. In some cases, children died.
GAO found that teachers are too often using these practices as frequent
discipline. They’re using it when children fidget in their chairs, are
unwilling to follow directions or leave a room.
In some cases, these abuses are nothing short of torture: teachers tying
children to chairs, taping their mouths shut, using handcuffs, denying them
food, fracturing bones, locking them in small dark spaces, and sitting on
them until they turn blue.
GAO also found that there are no federal laws on the books to keep this
from happening in schools, where kids spend most of their time. Hospitals
and other facilities that receive federal taxpayer dollars do have laws in
place to protect kids from these practices. Without a federal standard, state
laws are all over the map. Nineteen states have no laws whatsoever –
meaning kids have no protections.
The bill has bipartisan support – it was introduced by U.S. Reps. George
Miller (D-CA), and Cathy McMorris Rodgers (R-WA), who both serve on the
House Education and Labor Committee and are members of their respective party
leaderships.
Learn more about the GAO’s shocking investigation here:
_http://edlabor.house.gov/newsroom/2009/05/gao-report-finds-hundreds-of-a.shtml_
(http://edlabor.house.gov/newsroom/2009/05/gao-report-finds-hundreds-of-a.shtml) .
Read more about the bill here:
_http://edlabor.house.gov/blog/2009/12/preventing-harmful-restraint-a.shtml_
(http://edlabor.house.gov/blog/2009/12/preventing-harmful-restraint-a.shtml) .









Wednesday, March 03, 2010

Momma is a Breathin'...:)

LOLOLOL-I didnt know what else to title this one...LOLOL
But lets just say I am in a MUCH better place than where my mind was last night.

I think last night I just got overwhelmed-my heart was beating fast as I was writing that post and I think all these forums and things I have been reading on line just broke me last night. I havent been in such a misereable state since I was dealing with Stingers issues at school and crying every night not knowing what to do:(

My BESTEST Girlfriend called me this morning. BB-You have NO idea how I SOOO needed to hear those words from you!!!{{BIG HUGS}}We went over everything that I needed to say to the Dr, questions I needed to ask him, where I needed to tell that quacky nurse to stick it....LOLOL, my worries and concerns she helped calm :)As usual she is full of pearls of wisdom and I wrote everything down as she was talking-as I usually do....So when I talked to the nurse early this morning I was armed and ready!! ;)LOLOLOL

The Dr called me back early this afternoon-I coulndt believe it!!!! But I had my paper ready...LOLOL We went through my list:

#1- had they sent over my records to the ENT I will be seeing next week?
-they hadnt...sigh....what the heck people????So that was a very good question!!!
He said that the Dr will scope me...fun....but its nothing like a gastro scope(no garden hose I guess...;)BB)But probably will be going down my nose...*shuddering* Will DEF NOT be looking for that one on YouTube!!!!
#2-My Family History
-I hadnt had a chance to explain to him abt my other family members who have had thyroid cancer. He got very quite.......as if he didnt know what to say....but he did say that that was VERY pertinant info...
#3-Why have we not discussed removing my thyroid at all?
-he said my levels were good, that my thyroid was in good working order, and that right now as my nodules are still very small it is better to wait then go in.
#4- will this goiter eventually turn into cancer?
-again he got very quite.......and hesitated to answer me....which I didnt like...LOLOL, but at least his silence was honest-eh? As he really couldnt tell me that I guess...so Im taking that as a can change? He said there is always a possibility ....seamed very confident that with my biopsy that things looked good for right now...and I didnt need to worry.....

So I guess its still heads or tails ard here....LOLOLOL, but its amazing what this conversation has done to calm my nerves on everything...guess I just needed to hear him say it...(okay got me BB;P)She said that would be the case-she knows me well-eh? LOLOLOL

So Im calm tonight-not on the verge of a breakdown...LOLOLOL I haven't been glues to teh computer reading nightmares upon nightmares...-which is amazing and says alot if you know me;)LOLOL

I want to thank everyone again for keeping me in your prayers-they are soooo much appreciated...:)I will keep ya posted as far as what the ENT says-I'm hoping he can tell me more abt what is going on...

Today Monkey Boy stayed home from school-he was complaining about a tummy ache and started to cry. He hashad a cough and runny nose just like me...He rested for a bit and he was okay the rest of the day. But tonight after dinner he had a fever that shot up to 102.2. His face and ears were bright red and he was just laying there looking so misereable. I havent had fevers ard her since the kids were way small-so I panicked....LOLOLOL But its started to come down now with some meds. Last I checked it was down to 101-so its going down slowly....:)Hes sleeping on the couch down here tonight till we go to bed so I can keep a watch over him. Guess no school for him tom again....Poor little guy:(
I HATE it when my kiddoes are sick. :( Stinger has a stuffy nose, and he is freaking out when anyone coughs as "coughs can spread up to 5 feet MOM!!!" He also is stuffing his nose with toilet paper-dont know what that is exactly doing for him-but he does it whenever he gets congested...LOLOLOL-too funny!!!LOLOLOL Flmaingo has a cough, but she is not feeling so lousy and WANTS to go to school....so she must not be bad-eh?;)LOLOLOL

But thats abt it-the only one who hasnt caught anything is dh*knock on wood.... HARD*;)
















Tuesday, March 02, 2010

Update-Thyroid Stuff.....

I called the Dr today and low and behold he had tried to call our house number-which we dont have anymore...so at least I know he wasnt ignoring me...I gave them my cell awhile ago-guess he didnt get the memo?LOLOL;)
But he left a note incase I called :)

I am being referred to an ENT(Ear, Nose, Throat) Dr-who will follow up on my swallowing issues-probably a scope-fun-eh? :)Har-Har....
My apt is for next Tuesday....so we shall see what he says....as my Dr. doesnt think my swallowing issues and goiter/nodule are related..?

As far as my Thyroid goes-I looked online and found my tests( a cool thing our hospital has now)my levels are 1.3-I was told they were much higher......and also my ultra sound showed a cyst on the left side of my thyroid, but not as big. My solid nodule is 1.5cm.

Anyway-they want to "watch and see"...sigh...so I will be getting another ultrasound in 4-6 months...yeah......:(To see if it has progressed etc.......changed....has cancer.....yeah....

Im not liking this wait and see approach....Ive been reading online abt alot of women who had decided to get their thyroid out and it had turned up to be cancer-and FNA said benign.....also a friend of mine said the Dr wording was interesting...
"CONSISTANT with a benign colloid goiter" they said that "consistant" isnt as neg as just say "benign colloid goiter" so I thought that was interesting....."If its a goiter then its going to grow and it will probably have to come out" another said....

Many take it out because of Family History and it is benign after it comes back from Pathology and they tell their Endo "Gee I wish I hadnt removed it" and you know what the Endo says "No, its good you did as a solid nodule can change into anything-at any time..." So GREAT!!LOLOLOL

Anyone-what the heck would you do? As Im in Limbo yet again....its a 50/50 type deal-but its 100% driving me batty...


So again...what exactly am I waiting for...I just have no idea what to do...yet again...

Ack!! LOLOLOL...sheesh.....my life...waiting...on an egg shell....I see it now....Good times-eh?









Monday, March 01, 2010

Fantastic News!!!!!! WHOOT!!!

Well I got my results today...All I heard was BENIGN!!!LOLOLOLOLOL
Praising big time here!!!!!WHOOT!!!!!

They said it was "consistant with benign...something or other...goiter....dont exactly know what to do now-as Im still having these strange swallowing issues and I dont know what to do abt it...???I think I will ask my Dr to refer me to an Endo-who deals specifically with goiters/nodules, thyroid issues...

I finally got my med online set up-so I can see images, labs etc... It said that my thyroid levels were 1.3-so isnt that really low?? So is my thyroid going to call it quits anyway-Im thinking maybee dh is too, that now is better to deal with thinsg than later...so I will wait and see what teh Dr says-he hasnt been calling me back...sigh,....and you knwo me-I have dozens of questions on what to do now...LOLOL
But important thing is-BENIGN!!!WHOOT!!!!

I told Dh and he was soooooo happy-I had no idea he was so worried, but he says this weekend we will go out and celebrate!! LOLOLOL
I DO feel like celebrating-its like a big weight has been lifted!!!!like I have been carrying ard this BIG Bolder...and -Poof-its gone...okay not completely as I am a worry wort...but its been drastically reduced in size....LOLOLOL